Thursday, 31 October 2013

A Walk in the Hills for JRDF

Just received this and as much as I'm tempted, timings aren't convenient. If you can though it sounds fantastic!!!

Calling all those living with type 1 diabetes – could you climb Kilimanjaro?

Be part of type 1 diabetes history and climb Kilimanjaro - JDRF, the type 1 diabetes charity, is looking to recruit the largest team of people living with the condition ever to scale the mighty Mount Kilimanjaro in Tanzania.  This thrilling event is also open to those without type 1 diabetes.

For seven consecutive days in June 2014, the JDRF team will trek the beautiful Marangu Trail, through muddy rainforest, along rocky paths and over valleys, past glaciers and ice cliffs. Each night will be spent at a different campsite offering team members the opportunity to wake up to a stunning scenic view every morning – and to return home with the satisfaction of having scaled Africa’s biggest mountain.

The challenge has been carefully assessed and planned by Classic Tours, with fully trained medical staff on hand to assist. With an extra day spent acclimatising on the mountain (compared to many routes), this is a great chance for those with type 1 diabetes to reach the summit.  But you don’t have to have type 1 diabetes to take part; this trip will take up to 35 people to the summit of Kilimanjaro.

‘The JDRF Climb Kilimanjaro challenge is a fantastic opportunity for those with type 1 diabetes to prove to themselves and the world that having the condition does not stop them embracing the most physical and exciting conquests. There will be DSNs (Diabetes Specialist Nurses) joining in the climb, who will provide specialist advice on training tips, equipment and nutrition. With careful understanding of how the body works, participants will have the chance to reach the summit, and return with the satisfaction of knowing that no challenge is ever impossible.’  Dr Ian Gallen, Editor of popular diabetes and exercise forum Runsweet.com and Consultant Diabetologist at the Royal Berkshire Foundation Trust, Reading.

JDRF is now recruiting people living with the condition to join the challenge – and to show the world what they can do. They will trek alongside Becky Botham-Armstrong, the daughter of Ian Botham, and professional snowboarder Chris Southwell.

'Being diagnosed with type 1 diabetes at the age of nine was incredibly challenging for me and my family. But I learned to manage my condition. I also learned that having type 1 needn’t stop you doing wonderful things in life. There’s no better way to prove this than climbing Africa’s highest mountain. In summer 2014, I will be joining a team of JDRF supporters – all living with type 1 diabetes – to climb Kilimanjaro. I am very proud to be supporting a charity that funds vital research to better treat, prevent and eventually cure type 1 diabetes.'  Becky Botham-Armstrong

‘Climbing Kilimanjaro is part of my 7C7A Challenge which will see me take on 7 of the most demanding endurance events on 7 continents, to prove that having type 1 diabetes should not stop people from living their lives to the full. I want to use this challenge to help raise awareness of type 1 diabetes worldwide and prove too what a person with diabetes can achieve.' Chris Southwell, professional snowboarder and JDRF Ambassador

 How to take part

JDRF would be thrilled to welcome those living with type 1 diabetes onto the bespoke JDRF Climb Kilimanjaro challenge. To take part you will need to register as a self-funder:

·         Pay a £350 registration fee at the time of booking to confirm your place and pay a further £1,749 + £450 in taxes nine weeks in advance of the event (11 April 2014).


You are then able to raise simply as much as you can.  We would suggest setting yourself a target of £750.

Friday, 25 October 2013

Emergency Treatment

As always it seems, apologies for the delay in a new post. You may be in luck though depending on how much you enjoy reading my ramblings! I'm half way through writing one unrelated (well, it's always about the D but you know what I mean) post when I received an email from a friend which has led to today's post. In other news my pump now has a name - Fred. I can't remember where I got inspiration for that from.

Apologies in advance to any MDIers reading this as it will be very pump centred. I am genuinely sorry about that but as I said this is an extra one that came up because of something I was asked to take part in, so it's just the way it is. Normal service will be resumed next time but keep reading anyway as it might be helpful.

I'm now part of a small group of local people with diabetes who meet every couple of months to discuss things pump related. Next meeting 11th November with the wonderful Lesley from INPUT coming up to offer her wisdom and knowledge. Please come along if you can - 7.30pm. The Gregson Centre, Lancaster.

Anyway the wonderful Hazel who leads the group has become a member of our local CCG (Clinical Commissioning Group) and as part of this attended training for HCP and community workers who deal with people with diabetes. She felt the training was good but lacked any detail on how to handle an insulin pump wearer who has a need for urgent assistance due to either hypo or DKA ----- wow! That paragraph contained a LOT of three letter acronyms. Sorry. I'm quickly turning into the man who gives really bad PowerPoint presentations.

Below is my response to the question. I'm sure everyone will have a different way of answering the same question as to how you'd like to be treated but I think the biggest point is discussion between patient and clinician....

In the event of needing assistance from a health professional for a hypo or DKA, (both in the community or as a hospital inpatient), how would you wish your pump treatment to be managed? 

I'll try to keep this simple without being patronising. Obviously being HCPs in the field of diabetes means you will have a good understanding of insulin and its needs and effects.

A good starting point in relation to how a HCP would handle me as a person with diabetes with a pump would be to remember that it stays attached to me 24/7 because I need it to stay alive. The pump continually feeds very small amounts of fast-acting insulin. This insulin has an active time of between 3 and four hours. If the pump is not attached to me then I have no other background or long-acting insulin to keep my body safe. Within a short space of time my blood glucose will rise to dangerously high levels.

I said above that my pump insulin works for between 3 and 4 hours. This is correct and it also starts to hit it's peak effectiveness around 30 minutes after being given. This means that disconnecting the pump in the event of a hypo won't have an immediate effect on my blood glucose levels and will instead cause problems in the following few hours.

You may be guessing where I'm going with this but I'll put it in very simple terms; if you remove my pump you may become physically harmed when I fight you Rambo-style to get it reattached. It's not an accessory, it is what is keeping me alive and disconnecting it shouldn't be an option. Ever. Unless you receive direct instruction from Dr X or Dr Y. The pump (mine's called Fred) is only providing me with background insulin. If you came into contact with a patient on the basal-bolus regime you wouldn't consider trying to stop their basal insulin's effectiveness first.

So what do you do in case of severe hypo? Exactly the same as you would for someone on MDI or other injection regimes. Treat either orally if possible or with glucagon if unconscious. Feel free to use the 15-15 rule of 15g of quick acting carbs every 15 minutes and hopefully within a short space of time I'll be conscious enough to thank you for your actions and we can work together to identify the cause. If I was unconscious then further investigation would be needed. In the case of hospitalisation the same rules apply in relation to the pump. Keep it connected and let me handle the dosage in partnership with a trained diabetes HCP.

DKA is slightly different. Treating in an emergency situation is less likely as the symptoms might come over a longer period. The pump may also be (amongst 101 other things) the cause of the DKA if it has a blockage or a fault. By the time DKA has kicked in I would expect to be correcting using my insulin pen or a syringe and partnered with this changing my pump reservoir and set. Discussion with Dr X or Dr Y should be had as quickly as possible and preferably with me involved in that discussion.

Some simple things to remember that will help you avoid injury and also ensure I recover from my hypo or DKA:
1: Don't touch Fred!
2: Treat then speak. Once I'm relatively conscious involve me in all discussions. It's my diabetes and I've lived with it 24/7 for thirty-too-many years so I feel I've got a decent understanding and can also potentially spot any impact of clinical decisions.
3: Don't take it personally. When low I may become abusive and say some not very nice things even if you don't touch Fred. That's out of my control unfortunately but hopefully we can laugh about it later together.
4: My diabetes will vary. Although it's hard to get a grasp of; all people with diabetes (I'm not a diabetic, I'm a person) need to manage their control differently. What works for me might not work for Bill down the road. That doesn't make your job easy but it does mean listening to me might be useful.
5: Afterwards we do need to find the cause but this is through discussion and please don't blame anyone. Things happen. Loading me with guilt won't help me engage with you.
6: Congratulate yourselves on saving a life. Diabetes is a serious condition but it only proves this now and again when severe hypo or DKA kick in. You've done a good job in bringing me back round and I do appreciate it.

Hopefully this is helpful and please feel free to contact me to discuss further at any time. 

Dave
aka @sowerbee

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I'm sure you might have said something different or threatened even more violence but if my words can help improve knowledge locally then all is good.

Thanks for reading and do return soon as I hope to have another piece up in the next few days (or weeks or months depending on my poor posting skills).

Take care,
Dave